Country: East Timor

The bonds that are formed between ROMAC members and our young patients are often enduring ones. Recently, our ROMAC Timor-Leste team caught up with Celestina a decade after her successful treatment. Celestina was born in 2003 in Timor-Leste with Ellis–Van Creveld syndrome (EVC), a rare genetic disorder characterised by disabling skeletal abnormalities and life-threatening heart Continued…

Two-year-old Junitalia from Timor-Leste was a very sick little girl. She was diagnosed with a Tetralogy of Fallot (ToF) which meant her little heart had multiple problems and required urgent open heart surgery. Junitalia was referred to ROMAC for assistance.

Teretoriano was referred to ROMAC by the Biro Pite Clinic in Timor-Leste. He had been diagnosed with a Wilm’s tumour of the kidney. As his mother had suffered TB, Teretoriano’s grandmother Claudina had to accompanied him. He arrived very ill and had to have immediate surgery

Deolindo, a three-year-old boy from Timor-Leste was diagnosed with testicular cancer. The only option was to administer chemotherapy at the GVNH-National Hospital in Dili.

Isac, an extremely ill 14y.o. boy from Timor-Leste was referred to ROMAC with a suspected benign brain lesion. He had lost all sight in his left-eye and had only partial sight in the right-eye.

Heldericky (aka Ricky) had a vascular malformation in his leg, which meant the leg muscles did not develop normally and he had chronic pain.

Working together we can achieve miracles! ROMAC teamed up with the new Global Program at Royal Children’s Hospital, Melbourne, and Children’s First Foundation to not only save a life but to make a whole new future for Tina.

Eight year old Geovanio weighed only 16 kg and had to be wheeled off the flight from East Timor in a baby stroller as he was too sick to walk.

After arriving from Timor Leste, baby Quivania and her mother Ana, pictured with Liane Corbett ROMAC District helper, were in the care of Dr David Lord at Children’s Hospital, Westmead. Dr. Lord’s specialty is Paediatric Interventional Radiology and Medical Imaging.

8 months old baby boy Jofi came into Mater Children’s Hospital in Brisbane from Timor Leste with his mother Efizenia. Jofi has a serious cardiac condition, which caused some concern.